Saturday, March 14, 2009

Not Exactly a Cookie Cutter Diagnosis, is it?

It wasn't until recently that I have realized I AM different. It was like a cataclysmic explosion....BAM...BOOM!!! All of a sudden, I came to the startling realization, I am different. Not different in a bad way, exactly, but in a way that was uncomfortable. It was as if I was trying to fit into a pair jeans one size too small, they fit, but never felt comfortable.

To the neurotypical...imagine this scenario:

Imagine going to a party hosted by foreign diplomats, that you really don't want to have to go, where for a few hours you have to be cheerful and pleasant, and above all else, converse constantly with others. You don't know these people, they don't even speak your mother tongue very well, but you still have to make small talk with them, to make a good impression. Your grasp of their language is limited, and the conversation ends before it has even really started. People seem bored by you, and the conversation has huge gaps, and eventually they grow annoyed and move on. So you move onto mingle with the next group of people, but the same thing happens, again, and again, and again. But you get through it, it is only one night, after all.

Now try living your whole life like that, with every aspect of your life hindered by an inability to be social.

Not just shy, quiet, or an introvert. But a person who is physically unable to socialize with others, because WE DON'T KNOW HOW. Since we can't read about how to be friends, we don't understand how. We are unsure of saying the wrong things, so we look to other people for their reaction, often times unconsciously. We mimic, mime, and imitate other people, but we never really know who WE are, because we have to expend so much energy into appearing to be someone we are not. We spend large amounts of time trying to find the right things to say, we don't have enough energy left over to make it sound sincere.

After a while, you realize that maybe other people are more sincere than you, it's not that you don't feel SYMPATHY, you can't feel EMPATHY. You care about other people, and know that you should do more, but it's hard, because you don't know where to begin to be something you aren't. You begin to feel maybe you are a sociopath, that perhaps you are some horrible, evil person who really doesn't give a rat's ass (I just got the meaning of that idiom, today!) about anybody.

We DO CARE about others, it's just that because for so long we have been isolated from others, we tend to think more about ourselves, as that is who we are used to spending time with.

How many of us have struggled with a lack of friends, and retreated to the sanctuary of our minds, the internet, and other solitary activities? Where does the line get drawn that brings you from somebody who enjoys solitary activities, to an individual who has no choice in the matter, due to a lack of being able to relate to people in social situations?

They talk of the Asperger's individual as one of does not partake in fashion trends or lacks in the personal hygiene department. I am neither. I adore clothes, shopping, and fashion, and am very fastidious in my grooming rituals. I have 3 tattoos, with my entire sleeve (arm) being started this spring, the pain of tattoos does not bother me, also not necessarily a trait of Asperger's.

Is there anybody else out there who fits some of the criteria for Asperger's, but not necessarily all of it? The cookie cutter for Asperger's is too small, and some of us are the pastry that gets thrown out, due to misformed shape!

Thoughts? Comments?

I'd love to hear them!

2 comments:

  1. I don't care for fashion, but my hygiene is excellent. My lack of care for fashion is I want clothes for the situation, that will hold up. Not that everyone thinks is cool.
    And sometimes, an inability to feel empathy is not just related to aspergers. It's hard to understand a situation fully, but sometimes to any extent, without having first been there and experienced it yourself.

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  2. It is very typical for people with Aspergers to fit some, but not all, of the criteria. I can mask most of the signs of it since I was diagnosed very young, but if I'm not around people for a while I slip back into bad habits, mostly talking about things I'm obsessed with and boring people.

    I saw a link to your blog on another website, and having AS myself thought I'd drop by. I see it hasn't been updated in a long time, so I have no idea if you are still reading it, but I thought I'd comment as I know finding other high-functioning AS people can be hard, and heck, I'd like to chat with another Aspie.

    I think your metaphor of the diplomatic party is quite good, I may use that one myself sometime.

    I don't know about you, but I don't find I lack empathy. I hate it when my friends are in pain, I care so much, I just don't have a fucking idea what to DO about it.

    I do like looking nice, but over time I often find myself slipping back into not caring, forgetting to shave for a week, etc. I am however very good on personal hygiene, having at least one shower a day, often two, likely as a result of being around creepy, unbathed, geeks.

    The book you should really read is The complete guide to Asperger's syndrome by Tony Attwood. It isn't hard to get from the library, and it is a very valuable read to any aspie. It was written as a guide to helping people without Asperger's Syndrome understand and live with friends and family that have it, but it also works very well the other way, giving people with Asperger's some insight into how those without it perceive them.
    Also cool about it is the doctor who diagnosed me is cited in it.

    Anyway, my email is the name I'm posting under @gmail.com if you are interested in talking-- I very much am, as it is rare to meet someone else with AS, let alone someone else who is also interested Chemistry (I'm in my final year of a B.Sc(Honours Chem) at McMaster University right now) I can also be found on twitter and various other places on the web under this name.

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